Visually Isabel is very well. She is so functional that the terapists don't believe she only has 5% visual acuity. We'll see. But the number is not important any more. I really would like her to be able to read and write the rest is not that important. She is a beautiful, smart, temper :) girl, ans she is ...
...WALKING (before 18 months).
Last week she had a fever. I know kids have them, but it's not the same in Isabel's case. With the brother I would wait for the 3 fever days and see. With Isabel, after the 2nd night and I regret not having seen a doctor that day.
About me...
I think I'm ok. I don't spend much time thinking about the eye we've lost, but I'm still very afraid of losing the other one, and it is still painfull to look to her pictures with two perfect eyes, or read something from those times.
I'm also having trouble in the smal dicisions. Should I leave to sleep alone and cry a litlle? Will she scrath the eye? She is very smart, and gets all the bad habits. If she fels asleep in my lap once it will take me more than a week to fix it.
On saturday I had an important exam in school, so I believe that the next days will be easier.
She is still losing wight, last week she was 8170g, she was almost 10 kg in October but it was most from the steroids. She is 18 months and size of a 8 months. These days she hasn't been eating much and is already ligther. I can't stop worrying.
These days we're trying to find find some support to Isabel desabilitie. We're testing her to see how her global developing is comparing with kids the same age. But visually there isn't much help in our area. We'll see. We're going to get a Lightbox from US and see how it goes.
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