TWO YEARS OLD

Isabel is 2 years old: D

She's not that big, but she is bigger.

75 cm and.................... 8200g. Finally she has passed 8 kg.

She walks, runs, champs, pushs, pulls, everything. She is amazing and ...........very TEMPER: D, itmust get it from dad: D (even though no one agrees).

She is catching up and is great. Eyes stable, development very quick and nutrition evolving. I think I just want a little less vomiting, but is better (I real hate vomit, I had to much of it)

I’ll just let you some pictures so you can see How she is going….

She doesn't want to sleep (may be the bed is to soft)

Always happy

Completely crazy

It has been so long! - Good and bad news

Isabel has her first prosthetic shell. She will change every 15 to 30 days to be similar to the right eye.

I'll leave you some pictures of my beautiful princess before and after.

Not so good 7550g and almost 2 years old

Peter's Plus??????????????'

20 Months

Less than 8 kg...I'm starting to get really worried..........

:(((((((((

kisses

Isabel loves to kiss.

:)

All day long... I've never seen a baby kissing like this at this age. Normally they like kisses but don't kiss. She loves both. There's never to many kisses.

just to make it officialy

Everyone, I'M WALKING...

...and as my seeing eye is fragile I'm wearing one of these....

Officially 32

On March, 1st I turned 32

:)))))))))))

Everyday life

We're all fine, a part from the normal things kids have in cold weather.

Visually Isabel is very well. She is so functional that the terapists don't believe she only has 5% visual acuity. We'll see. But the number is not important any more. I really would like her to be able to read and write the rest is not that important. She is a beautiful, smart, temper :) girl, ans she is ...

...WALKING (before 18 months).

Last week she had a fever. I know kids have them, but it's not the same in Isabel's case. With the brother I would wait for the 3 fever days and see. With Isabel, after the 2nd night and I regret not having seen a doctor that day.

About me...

I think I'm ok. I don't spend much time thinking about the eye we've lost, but I'm still very afraid of losing the other one, and it is still painfull to look to her pictures with two perfect eyes, or read something from those times.

I'm also having trouble in the smal dicisions. Should I leave to sleep alone and cry a litlle? Will she scrath the eye? She is very smart, and gets all the bad habits. If she fels asleep in my lap once it will take me more than a week to fix it.

On saturday I had an important exam in school, so I believe that the next days will be easier.

She is still losing wight, last week she was 8170g, she was almost 10 kg in October but it was most from the steroids. She is 18 months and size of a 8 months. These days she hasn't been eating much and is already ligther. I can't stop worrying.

These days we're trying to find find some support to Isabel desabilitie. We're testing her to see how her global developing is comparing with kids the same age. But visually there isn't much help in our area. We'll see. We're going to get a Lightbox from US and see how it goes.

Thoughts

I was "cleaning" my PC and found this... a resume of my worries to ask the doctor when still didn't had the final diagnose for the left eye...

Just to share...

"How was on Saturday?

Did you speak you Mr Ezra?

What can he find in theater that can make him not to operate?

What do you think? I remember, He told me there was a very big probability of him not doing anything? But, I keep thinking why? Why not if we have nothing to lose?

I don’t want to keep operating for nothing. Anesthesia, pain. I really know that we have to know when to stop. I’m saying that to myself, and try to prepare for that. But I feel that is all or nothing. That may be is not the right moment.

I really don’t feel read to stop now. Am I wrong? What Am I missing? What can he find, that is worst then what we know now? And if he thinks we shouldn't operate? Can I phone you? He seems fantastic, and very trustful. But to decide that, in that moment, without you, that has been with us since the beginning is going to be difficult.

And if the eye is lost, can we just leave it? Not do anything? Will just go smaller and smaller? If that’s the case, in the future I’ll have to thing is aesthetics. Something that now is not important because we are looking for function no matter what the eye looks like. But that’s different.

And the cornea will get clouded. He told me that it happens always. But then he said it could be a month or a year, that she could always have another transplant. (Do you agree? If yes, when? When can she have another)So can the cornea get less clouded with time? And if it gets clouded, how much clouded? Clouded that allows light to go into the eye? If the eye gives something can the cornea allow it to go into the eye?

I’m confused"

83%

I don't know hoe it works in other countries, but in Portugal you can have a "degree of disability" when you are born, or acquired, some kind of incapacity.

Isabel has a 83% degree of disability for her visual impairment. 6/500 visual acuity in a single eye

It is what it is. This is only important for taxes purpuses. And I can tell you that the nassociantion of low vision in children said Isabel was a "visual" child. That she was fine, and uses all her vision, no matter how low it is.

Now we have to stimulate her

Back to school

I started this journey in 2008 to finish in 2010. Isabel was born in 09/09/09 at the beginning of the 2nd year and I had to stop for a while. Restarted in May 2010, then stopped again, and I'm restarting (again) this month.

After this term I still have the September term to finish but I'm not giving up.

I love my classes, I'm exhausted and very happy.

Christmas 2010

Christmas 2010 at home :)

What's new?

Christmas was fine, but chaotic. I should have more days. Is simple exhausting.

Isabel had a kind of inflammation in the lungs. Nothing serious, but enough to make her vomit every day. Now we're eating a little better. And

... WE EAT FRUIT :)

The bad news is that something is bothering us, and we don't sleep so well at night (very bad nights)

I'm going back to school. I'll try to finish my MBA. Then we'll see. I have to find something compatible with Isabel.

Today we when to get Isabel's degree of impairment. Even though I hate it, I believe is important to have all the benefits to give Isabel everything she needs.

So, as you can see, we're fine.

Some people might think that we have a bad impression about 2010, but to tell you the truth we don't. I was talking with my husband, and, even though it had some very difficult moments, it had its good moments. My kids are growing, and they are the best kids in the world (well, today the misbehave). I like being back home and having my husband around (at least some days - he works far from home 2 to 4 days a week).

We've learn to appreciate the moments we have together and we enjoys every moment.

Some days seam like those first dates that your heart beets faster and faster.

Nevertheless, 2011 I'm expecting very nice things. Counting on you...

Happy New Year

:)

A great year to you all. I know mine Will.